Inquiry set to question 'schizophrenia' label

Is the label 'schizophrenia' stigmatising people or helpting them, a new independent inquiry is set to find out.

With many more poor and black and minority ethnic (BME) people labelled ‘schizophrenics’ than other groups, the diagnosis has been controversial for a long time.

Supported by 23 national and international organisations and 100 individuals, experts and those who have lived with the label are getting together to explore whether the label is useful or counterproductive.

The inquiry will investigate the impact the label ‘schizophrenia’ has on people’s lives and collect evidence from mental health service users, carers and medical professionals among others. 

An independent panel consisting of service users, academics and a lawyer will examine the evidence collected and make recommendations to professional, statutory and voluntary sector bodies such as the Department of Health, the Royal College of Psychiatrists, the National Institute for Health and Clinical Excellence and mental health charities. 

The inquiry, which has not sourced funding from any organisation, will collect evidence via their website

Retired psychiatrist, Dr Suman Fernando, one of the four people co-ordinating the inquiry, said: “We are aware of the increasing unease, even among psychiatrists, about the use of ‘schizophrenia’ or ‘psychosis’ to describe complex problems of living. More importantly, when these are used as labels attached to people, they can cause stigma and undermine the humanity of people given these labels.  Indeed, some people seem to suffer from the labels more than they do from other problems of living. Black people in Britain have historically suffered disproportionately in this way.”

Dominic Makuwachuma-Walker, who has experience of being labelled, and is a member of the inquiry panel, said: “The time is right for finding out really what is going on when we label people with a psychiatric diagnosis such as ‘schizophrenia’. Does this label provide the help that some people may actually need or are we just propping up a multi-million dollar research and pharmaceutical industry? And how do we take on board the different cultural meanings that people give to experiences that are being diagnosed as ‘schizophrenia’?”

The evidence-collection phase of the Inquiry will run until June 2013; the report will be published in October 2014.

For more information on the Inquiry, please contact
This e-mail address is being protected from spambots. You need JavaScript enabled to view it and for telephone enquiries, contact Dr Suman Fernando at 02074859122 or Dr Jayasree Kalathil at 07906165614.